Welcome to the FSH Society
Glad you found us! Come in.
We are the world's largest and most progressive grassroots network of facioscapulohumeral muscular dystrophy (FSHD) patients, their families and research activists. The FSH Society harnesses the power and insight of a patient-driven model, as it was founded on a promise between two research scientists with FSHD never to let the disease be forgotten or neglected. We are a cause without borders.
Please use this site to learn more about FSHD, to follow research advances, and to become a member of the FSH Society!
Join with thousands of patients, family members and friends in supporting research on facioscapulohumeral muscular dystrophy. The FSH Society helped build a thriving scientific enterprise, and today we stand on the brink of discovering the first treatments. With big opportunities come big challenges, to raise awareness, rally patients and families to volunteer for research, and empower scientists to stake their careers on finding a cure.
Get Involved! Have Questions? Call, E-mail, or Write Us!
Support Our Work, Make a Difference!
FSH Society has earned Charity Navigator's highest 4-Star Charity Navigator rating for a fifth consecutive year! More
FSH Watch Newsletters can be found here! More
For the FSH Society FSHD Patient Brochure, HERE
For the FSH Society's Physical Therapy Brochure, HERE
For the FSH Society's Living with FSHD Series FSHD: A Guide For Schools Brochure, HERE
Consider the gift of stock in 2013! It may now be a better way for you to support the FSH Society. More
Newly Diagnosed? Want to Talk to Someone Who Understands?
Meet others with FSHD online at our Facebook and Yahoo! Groups forums, click HERE
Combined Federal Campaign (CFC). Pledges made by Federal civilian, postal and military donors during the 2012 campaign season
(September 1st to December 15th)
can support the FSH Society. The FSH Society’s CFC identification number is 10239.
FSH Society 2012 Audited Financial Statements HERE
Above left: A microscope photo of a myoblast cell that will evolve into a skeletal muscle cell and muscle fiber.
Above right: A common first sign of FSHD, asymptomatic scapular fixator causing scapular winging and difficulty reaching above the shoulder level.
News & Events
FSH Society, Inc. • 450 Bedford Street • Lexington, MA 02420 • Tel: 781 301-6060 • Fax: 781 862-1116